ISPID - International Society for the Study and Prevention of Perinatal and Infant Death
ISPID - International Society for the Study and Prevention of Perinatal and Infant Death

International Society for the Study and Prevention of Perinatal and Infant Death

Stillbirth Research Data Base - Study details

Baby Loss Surveys at www.Babylosssurvey.com

Study Aim We are hoping to learn from the many experiences of those involved with pregnancy and infant loss. We would like to learn what practices and/or tools are most helpful, which practices may need to be modified, and discover possible ideas for future practice implementations.
Study Design/Methods Several Surveys have been designed to specific loss categories. For example, there is expected loss of a baby and unexpected loss of a baby. We also have miscarriage surveys for pregnancy loss at less than 20 weeks. There are separate studies for mothers and fathers.
Countries of Recruitment targetting primariily USA but limited to USA
Target number of participants 500
Short synopsis We are hoping to learn from the many experiences of those involved with pregnancy and infant loss. We would like to learn what practices and/or tools are most helpful, which practices may need to be modified, and discover possible ideas for future practice implementations.
Funding sources funded by donations
Ethics Board Approval Baby Loss Survey study 417approval Salus IRB 45 CFR 46.101
Study contact name Donna Murphy
Contact email heavensgain@fuse.net
Sponsoring organizations Heaven's Gain Ministries
Collaborators Study Team:Pat Flynn PHD - First Breath and Loss Doulas InternationalDonna Murphy LPTA, BLD - Loss Doulas International & President of Heaven’s Gain LLC.Study Coordinators:Pat Flynn PHD - First Breath and Loss Doulas InternationalDonna Murphy LPTA, BLD - Loss Doulas International & President of Heaven’s Gain LLC.Mary Burwinkel MD Susan Meyer RNJulian Hein BS - IT Consultant
Status In Progress
(expected) Year of completion 2018
Citation details of journal articles
Additional Comments

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